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The HHS Syndication Storefront allows you to syndicate (import) content from many HHS websites directly into your own website or application. These services are provided by HHS free of charge.

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NCATS

How to Get Involved in Research

research  registry  clinical trials  clinical studies  disease registry  researchers  clinical specimens  Genetic Disorders  rare diseases  Rare disorders  Genetic Disease  biospecimen  biorepository 

Reports about clinical research study results are often in the news, but it can be difficult to find out about studies that are in progress. If you or a loved one has a rare condition, you may be interested in participating in a research study. This guide can help you find current research studies.

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NCATS

Support for Patients and Families

support  registry  clinical trials  disease registry  advocacy  support groups  Genetic Disorders  non-profit/community and advocacy organizations  rare diseases  Rare disorders  Genetic Disease  Patient Advocacy  family support 

Individuals and families affected by rare medical conditions might look to nonprofit support and advocacy groups for different reasons. Some may want to find other people who understand how having the condition affects their lives. Others are searching for medical information, treatment options, the latest research, or financial aid resources. This guide will help you learn more about the different types of information and services offered by nonprofit support and advocacy groups.

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NCATS

Tips for the Undiagnosed

diagnosis  genetics  clinical trials  Genetic Disorders  rare diseases  undiagnosed  Rare disorders  Genetic Disease 

Trying to find an underlying diagnosis for many conditions can be a very long and frustrating experience. With more rare conditions, a diagnosis can often take many years. Although this can be incredibly difficult, the following information may help you navigate through the process of trying to obtain a diagnosis.

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NCATS

How to Find a Disease Specialist

genetics  clinical trials  healthcare providers  genetic counseling  healthcare professionals  researchers  rare diseases  Genetic Disease 

Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, the guidelines below include several ways to identify healthcare professionals who have experience with a particular condition.

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NIDDK

Urinary Tract Infection in Children

prevention  symptoms  children  causes  definition  treatments  bladder  clinical trials  Diagnostic Tests  Drug Therapy  Risk Factors  Urodynamics  Urologic Diseases  Urinary Tract  Urethra  Magnetic Resonance Imaging  CT Scan  Urinary Tract Infection  Ultrasound  Vesicoureteral Reflux 

Read about bladder infections, as well as pain and urgency with urination, in children. Learn about the symptoms, causes, diagnosis, and treatments.

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NIDDK

Kidney Stones in Children

facts  prevention  food  symptoms  children  treatment  diabetes  causes  definition  eating  nutrition  diagnosis  diet  clinical trials  Diagnostic Tests  Urologic Diseases  CT Scan  Kidney Diseases  Kidney Stones  Calcium Oxalate 

Learn about the causes, symptoms, and diagnosis of kidney stones in children as well as prevention strategies and treatment options.

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NIDDK

Kidney Stones

facts  symptoms  treatment  diabetes  causes  definition  eating  diagnosis  diet  clinical trials  Urologic Diseases  Kidney Stones  Urinary Tract Infections  general public  Prostate Enlargement Benign Prostatic Hyperplasia  Urinary Stone Disease  nutrtion 

Learn about the causes, symptoms, and diagnosis of kidney stones as well as prevention strategies and treatment options.

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CDC

Lung Cancer Diagnosis and Treatment

cancer  treatment  CDC  breast  chemotherapy  radiation  surgery  clinical trials  hormonal therapy  biological therapy  complimentary and alternative medicine 

Breast cancer is treated in several ways. It depends on the kind of breast cancer and how far it has spread.

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CDC

Cervical Cancer Diagnosis and Treatment

cancer  treatment  cervical  diagnosis  radiation  medicine  surgery  clinical trials  basic information  gynecologic oncologist  chemotheraphy 

Cervical cancer is treated in several ways. It depends on the kind of cervical cancer and how far it has spread. Treatments include surgery, chemotherapy, and radiation therapy.

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CDC

Breast Cancer Treatment

cancer  treatment  CDC  breast  chemotherapy  radiation  surgery  clinical trials  hormonal therapy  biological therapy  complimentary and alternative medicine 

Breast cancer is treated in several ways. It depends on the kind of breast cancer and how far it has spread.

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