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The HHS Syndication Storefront allows you to syndicate (import) content from many HHS websites directly into your own website or application. These services are provided by HHS free of charge.

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Support for Patients and Families

support  registry  clinical trials  disease registry  advocacy  support groups  Genetic Disorders  non-profit/community and advocacy organizations  rare diseases  Rare disorders  Genetic Disease  Patient Advocacy  family support 

Individuals and families affected by rare medical conditions might look to nonprofit support and advocacy groups for different reasons. Some may want to find other people who understand how having the condition affects their lives. Others are searching for medical information, treatment options, the latest research, or financial aid resources. This guide will help you learn more about the different types of information and services offered by nonprofit support and advocacy groups.

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