How to Get Involved in Research

Reports about clinical research study results are often in the news, but it can be difficult to find out about studies that are in progress. If you or a loved one has a rare condition, you may be interested in participating in a research study. This guide can help you find current research studies.

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General: research registry clinical trials clinical studies disease registry researchers clinical specimens Genetic Disorders rare diseases Rare disorders Genetic Disease biospecimen biorepository

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