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How to Get Involved in Research

research  registry  clinical trials  clinical studies  disease registry  researchers  clinical specimens  Genetic Disorders  rare diseases  Rare disorders  Genetic Disease  biospecimen  biorepository 

Reports about clinical research study results are often in the news, but it can be difficult to find out about studies that are in progress. If you or a loved one has a rare condition, you may be interested in participating in a research study. This guide can help you find current research studies.

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